Clinicians - acute porphyria: refer a patient

The new Acute Porphyria International Support Group is now able to offer support to healthcare professionals looking after patients with suspected acute porphyria in countries where porphyria laboratory testing and specialist care are not available.  This may include arranging for biological samples from your patient to be sent to a specialist porphyria laboratory in Europe or the USA for diagnostic testing without charge.

The referring clinician should fill the IPNET webform, providing anonymised patient details, reasons for suspecting acute porphyria and full contact details.

Please note we are unable to accept referrals directly from patients. If you are a patient, please can we ask you to share the information above with your doctor.