Acute Porphyria International Support working Group (WG-APIS)

Chair
Penelope Stein
King’s College Hospital, London, UK

Members
Jordi To-Figueras
Hospital Clinic of the University of Barcelona, Spain
Antoine Poli
French center for porphyrias, Louis Mourier Hospital, Colombes, France
Eva Diehl-Wiesenecker
Charité-Universitätsmedizin Berlin, Germany
Kika Shabot
Sociedad Mexicana Para Porfiria, Mexico

Aim:
To provide acute porphyria support to healthcare professionals looking after patients in countries where specialist care is not available.  Our priorities are to facilitate diagnostic laboratory testing, management advice, and better access to treatments.