Organisation Name
The Swedish porphyria association (RMP)
Address
c/o Erica Lundström
Sköntorpsvägen 120
SE-12053 Ã…rsta
Sweden
Email
porfyrisremovejukdomar@gmail.com
Porphyria Related Activities
The Swedish porphyria association (RMP) was founded in 1976 and has around 500 members from the whole country.
RMP accepts members with all different porphyria diagnoses as well as family members, professionals and other interested persons.
The main purpose of RMP is to support porphyria patients in their contact with school, work and healthcare and to support research projects within the area of porphyria diseases.
RMP arranges member meetings in different parts of the country and has information on leaflets and on the website.
RMP is a member of Rare Diseases Sweden and collaborates with other porphyria patient organisations through their umbrella organisations.
