Porphyria Expert Clinical Centers

List of endorsed centers:

1. Centre Français des Porphyries, CRMR – Porphyries, Colombes, France
2. Sächsisches Porphyriezentrum - Klinikum Chemnitz gGmbH, Chemnitz, Germany
3. National Service for the Biochemical Diagnosis of Porphyrias, Petach Tikva, Israel
4. Norwegian Porphyria Centre (NAPOS), Bergen, Norway
5. Porphyria Unit. Hospital Clínic Barcelona, Spain
6. Porphyria Centre Sweden, Stockholm, Sweden
7. Swiss Reference Center for Porphyrias, Stadtspital Zürich, Switzerland
8. Porphyria Expertisecenter Rotterdam, Rotterdam, The Netherlands
9. Cardiff Porphyria Service, United Kingdom
10. Centre Belge des Porphyries, Brussels, Belgium
11. Rare Diseases Center, Milano, Italy
12. Center for Diagnosis and Management of Porphyrias, Modena, Italy
13. Center for diagnosis and management of porphyria, Nouvelle-Aquitaine, Bordeaux, France
14. Scottish Cutaneous Porphyria Service, Dundee, United Kingdom
15. Porphyria Multi Disciplinary Team of the second Hospital of Hebei Medical University, Shijiazhuang, China
16. Metabolic Center Leuven, Belgium

The procedure remains open all year round; the PECC WG will evaluate candidacies at least twice a year. You can apply through the Surveymonkey questionnaire available here