Organisation Name
Porphyria Association Denmark
Address
c/o Peder Soerensen
Vestergaards Alle 130
DK 5881 Skaarup
Email
Peder.soereremovensen@gmail.com
Website
www.porfyriforeningen.dk
Email
Peder.soereremovensen@gmail.com
Email
Nina.svanremoveborg@gmail.com
Porphyria Related Activities
Collect and mediate knowledge af porphyrias.
Support research.
Support and give advise to porphyria patients and their relatives.
Create a network for people with porphyria / porphyria genes.
The association is keen to learn news about porphyria, and may have contact to porphyria associations in other countries.