Association Française des Malades Atteints de Porphyries (A.F.M.A.P)

Country
France
Organisation Name
Association Française des Malades Atteints de Porphyries (A.F.M.A.P)
Address
14 rue Faraday
75017 Paris
Email
Association.porremovephyries@gmail.com
Website
www.porphyries-patients.org
Contact
President
Name
Sylvie LE MOAL
Email
Association.porremovephyries@gmail.com
Tel
+ 33 1 6 13 80 92 57
Porphyria Related Activities
AFMAP provides assistance and support to all porphyria patients and relatives : It aims at improving the quality of life and access to cure. AFMAP claims a strong advocacy role and defence of patients rights. Our organization is 100% volunteer.