Chair
Penelope Stein
King’s College Hospital, London, UK
Members
Jordi To-Figueras
Hospital Clinic of the University of Barcelona, Spain
Antoine Poli
French center for porphyrias, Louis Mourier Hospital, Colombes, France
Eva Diehl-Wiesenecker
Charité-Universitätsmedizin Berlin, Germany
Helmut Denker
Patient representative, Costa Rica
We offer support to clinicians looking after patients with suspected or confirmed porphyria in countries where expert advice is not available. We can help with laboratory testing, interpretation of results and management.
Please complete this webform. When we receive the form, we will contact you to arrange a consultation by email or video call.
We are unable to accept referrals directly from patients. If you are a patient, please share the information above with your doctor.