Ipnet Executive Board

President: Sverre SANDBERG
Norwegian Porphyria Centre, Bergen - Norway
sverre.sanremovedberg@uib.no
 
 

Secretary: Eliane SARDH
Porphyria Centre Sweden, Stockholm – Sweden  
eliane.sarremovedh@regionstockholm.se

 

Treasurer: Janneke LANGENDONK
Porphyria Center, Rotterdam - The Netherlands
epremovenet.treasurer@erasmusmc.nl

 

Patient Representative: Liz GILL
British Porphyria Association - United Kingdom
liz.gill@porphyremoveria.org.uk 
 
 

Member at Large: Maria Domenica CAPPELLINI
Rare Disease Center, Milan - Italy
maria.cappremoveellini@unimi.it

 

Member at Large: Jordi TO-FIGUERAS
Hospital Clinic of the University of Barcelona - Spain
JTremoveO@clinic.cat

 

Member at Large: Michael BADMINTON
Cardiff - United Kingdom
badmintoremovenmn@cardiff.ac.uk
 


Member at Large: Laurent GOUYA
French Centre of Porphyrias, Paris - France
laurent.gouya@inseremoverm.fr