Porphyria Association Denmark

Pays
Denmark
Nom de l'organisation
Porphyria Association Denmark
Adresse
Porfyriforeningen.dk
c/o Nina Svanborg
Baekmarksbrovej 94
DK7650 Boevlingbjerg
Denmark
Email
nina.svanremoveborg@gmail.com
Site Internet
www.porfyriforeningen.dk
Tél
+45 29259663
Contact
President
Nom
Nina Svanborg
Email
nina.svanremoveborg@gmail.com
Tél
+45 29259663
Objectifs et actions
Collect and mediate knowledge af porphyrias.
Support research.
Support and give advise to porphyria patients and their relatives.
Create a network for people with porphyria / porphyria genes.
The association is keen to learn news about porphyria, and may have contact to porphyria associations in other countries.