Canadian Association for Porphyria

Pays
Canada
Nom de l'organisation
Canadian Association for Porphyria/Association Canadienne de Porphyrie
Email
conremovetact@porphyriacanada.ca
Site Internet
https://www.porphyriacanada.ca
Objectifs et actions
• Information on diagnosis, treatment and management of the porphyrias
• Help with referrals and access to testing
• Gatherings and presentations for people living with porphyria
• Advocate for access to treatments in Canada