Association Française des Malades Atteints de Porphyries (A.F.M.A.P)

Pays
France
Nom de l'organisation
Association Française des Malades Atteints de Porphyries (A.F.M.A.P)
Adresse
14 rue Faraday
75017 Paris
Email
Association.porremovephyries@gmail.com
Site Internet
www.porphyries-patients.org
Contact
President
Nom
Sylvie LE MOAL
Email
Association.porremovephyries@gmail.com
Tél
+ 33 1 6 13 80 92 57
Objectifs et actions
AFMAP provides assistance and support to all porphyria patients and relatives : It aims at improving the quality of life and access to cure. AFMAP claims a strong advocacy role and defence of patients rights. Our organization is 100% volunteer.