Name of Centre
Metabolic Center Leuven
MD, PhD David Cassiman
.be (we do not offer medical advise via email)
This centre has been endorsed by Ipnet as a Porphyria Expert Clinical Centre (PECC).
University Hospital Leuven is a large university referral center for rare diseases and a hub of European Reference Networks (ERNs). It is a reference center for diagnostics, treatment and clinical follow-up for porphyria patients. We follow a large cohort of acute porphyria patients (with expertise in liver transplantation for this indication), EPP patients and PCT patients. We participate to international registries, natural history studies and treatment trials for porphyria.
Clinical questions contact
Prof. Dr. David Cassiman
Prof. Pieter Vermeersch